While I was nosing around online today, I came upon an article on the psychiatric needs of the pregnant post-infertility patient.
"Infertility," it said, "creates a crisis at the individual, relational and social levels."
Well, no shit.
I have spent the past 30 years as an infertile person. While I was strapped down as a 2 year old to better facilitate the gamma-blasting and obliteration of that ugly lump in my spinal cord, the doctors took my parents aside. Radiation cones out and bounces around in the body, they said. It will affect her reproductive organs and she'll be sterile. But we're just trying to add a few months to her short little life and it'll never come up anyway.
Some of their predictions didn't come true (I lived after all, I developed a functional lower jaw, my teeth were damaged but came in on schedule), but the infertility always held. As a child, it was a matter discussed behind my back. It emerged more and more the older I got. I became Poor-Amorette-Who'll-Never-Have Children, a built-in pathetic, tragic figure who was always good for clucking and gossip, a relief-inducing nonfactor in the little dynastic intrigues. I was aware of it, I resented it, but what could I do? It was completely out of my hands and that was the most frustrating of all.
I was doubly cursed because I really loved kids. I babysat during most of my free time, worked as an au pair, tutored Korean toddlers in English. When the well-meaning parents told me I'd make a good mother someday, I went home and cried. By that time, the cancer treatment wasn't the only element at play...I also had some genetic infertility issues that were pretty much a double whammy. When a high-school Home Ec teacher asked me if I planned to have kids, I hardened myself and told her no, I didn't want to take a chance on my child having cancer like mine. Then I began worrying that I'd cursed myself and that I'd get exactly what I asked for, even though it wasn't true.
Fast forward a few years, and I'm attending a family baby shower, trying my best to get through it. Everyone's playing a game. Tiny plastic babies are frozen in ice-cubes, and the person who melts their cube fastest and "gives birth" wins the game. Someone has handed me an ice cube and I'm cupping it in my hands with the rest of them. The other players giggle and shout as plastic feet emerge, or the sharp little ends of plastic hands. I look down at my ice cube and don't see anything inside. I don't have to melt it very far to realize that someone accidentally gave me a cube without a baby in it. I was keeping myself pretty much under control, then someone saw it and joked loudly about my "false pregnancy". It took all I had not to burst into tears on the spot. As I told Jeanne, it was all rather on-the-nose (and in-the-teeth) to me. Once again, I was Poor-Amorette-Who-Can't-Have-Kids, fulfilling my role with yet another pity-worthy situation to cluck over.
At family gatherings, people stopped handing me babies to hold.
The way my weight is distributed, combined with the stiff-backed way I have to get out of a chair, I looked pregnant at times. If I was wearing loose-fitting clothes, someone invariably asked me when I was due. Then I had to laugh and say "No, I'm just fat." Of course, they always felt bad once I said that, and the same person never asked me twice. But usually I'd get asked a couple of times a month.
First, my doctors said it'd be no problem, they'd just throw me on Clomid. But they got less optimistic as I neared the end of my twenties. I'd had a number of episodes that might have been miscarriages (there was no way to tell, due to my weird history), and they weren't playing well with my mental health. When I went in to my OB/GYN a few months ago, she joked about my eggs being "fried" (a joke I didn't particularly appreciate) and sent me to a genetics counselor to see if I should even bother trying fertility treatment. That appointment got me nowhere, since the counselor never followed up and the physician there became preoccupied by a professional pissing-contest with my endocrinologist.
Finally, thoroughly frustrated, I made a complete and total disconnection from any hope of having children. I forced it down my own throat, and it was hard. It was like deliberately eating poison. I resigned myself to adoption being my absolute only hope, and began to check into it. Know what I found? "Disqualifying factors: history of cancer."
I wanted to scream and trash the house. Was I not being punished enough, being infertile? Did they have to throw this in on top of it? I had absolutely no choice in the matter, and once again that unsheddable history was going to ruin everything. It controlled my childhood, it ruined my chosen career. I hate it more than anything; it's been the deciding factor in absolutely everything that goes on in my life. It's like an evil little gremlin that's always standing off to one side, jumping up and down gleefully, pointing and cackling, "I got you again! You thought you slipped past me this time, but I got you again!"
And then, suddenly, after a routine endocrinology appointment, I was told I was pregnant. I refused to believe it. I was certain that there was some vicious little tumor in me somewhere, pumping out hCG (as they do sometimes), and it would be the final kick-in-the-pants before I was put back in my place once and for all. Then I believed that if it really, somehow, was true, something suitably tragic would happen, because that's how it works for me. I was sure it was going to be ectopic, before I got the hard copy of the sonogram in my hands. Then I was sure I was going to miscarry. The study I was reading today says:
"Two extreme reactions in relation to the pregnancy might appear in some patients. Denial might occur in women who are not capable of developing an attachment to the fetus because of the anticipation or fear of negative events during pregnancy (e.g. miscarriage). Others might develop an exaggerated worry about each 'normal' physical event in the pregnancy...the fact that pregnant patients do not feel extremely happy about their pregnancy, as they feel they should, produces feelings of guilt and shame, which further reinforce feelings that may have developed when the infertility problem was first discovered."
I'm there. I'm so there. Only, I know how an infertile person would react to this whole post of mine, because I know how I would have reacted. It's a raw pain that cuts to your very core, and it gets worse with each happy story and each baby you see. You can smile at someone's news, you can exclaim over someone's cute new baby, but you feel like your heart is being ripped right out. It's got to be one of the worst pains in the world. The sentiment might be, "Oh, boo-hoo, bitch. You have a baby now and I don't. I never will."
And that brings me to the last part of this, the part of the lifetime of infertility that has completely hobbled me today. I feel guilty. I feel as if somehow I've overstepped my assigned role as Infertile Person. When the news first spread, everyone was stunned, and I felt uncomfortable. No one seemed happy. There were cautious inquiries regarding my health, certainly in no small part due to the fact that my health is going to make this a nightmare pregnancy. But I still have this nagging feeling as if... as if something did happen, if I miscarried or it was a stillbirth or something was otherwise wrong, the reaction of everyone around me would be relief. "Well, glad we don't have to worry about that foolishness anymore, everything's back the way it should be, she knows her place now."
It's keeping me from being truly happy about this, and it's making me feel as if I'm betraying every infertile person out there who is struggling with the completely real, completely horrible pain. I want to apologize for being pregnant. I want to keep from talking about it too often because I know how much it could hurt someone. It hurt me, and I still haven't transitioned out of my status as Poor-Amorette-Who-Can't-Have-Kids. How can I? It's the role I've been assigned my entire life.
25 January 2008
Wait, aren't I infertile?
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12 comments:
Amorette--OK, I am crying, but I am so glad you wrote this post. It must have been incredibly tough, but you laid it all out there. Good job.
You know, I have to say, those quotes about how women in your situation might react to being pregnant sounded like pretty healthy reactions to me, although I get it that the academics (or whoever they were) were saying that these reactions were not good.
Well, f--- them, anyway.
Love you, girl,
Jeanne
Hi Amorette,
I've visited your blog before having found out about it on Jeanne's site but I think this is my first time commenting (my memory is so shot forgive me if I've commented before and forgot that). I'm blown away by your ability to lay out your reactions and feelings in such a direct and honest way. I hope it helps you to be able to put it out here. I think it is incredibly healthy for you to be able to write this. My thoughts are with you, Carver
I clicked into this post through Jeanne's. Your honesty and courage are incredible. Nothing you feel is wrong. We'll all be sitting this out.
Beryl
This is just...stunning. And beautiful. I wish you all the luck in the universe, and I hope it works out well. You deserve this to be good.
I had the same feelings when I got pregnant and I didn't have a history of infertility. However, I had (still have) a friend who was (is) trying to have a baby and I had no trouble and felt guilty. I had 24 hours of joy and then 9 months of waiting for something to go wring. I think its pretty normal, if that helps at all. Of maybe you and I are just abnormal in similar ways?
BY they way, I meant to say YAY!!!!!!!
okay, i've hesitated on commenting long enough. realized i was doing the thing i hate -- "don't know what to say" (whine whine).
so, i will just say -- if you can infuse your offspring with even a portion of your humor, wit, and creativity, the world will be better for it. hang in there for this ride.
My first thought when you mentioned this on Flickr was, "She's going to be such a FUN mom!" Like Sarah said, hang in there. We are all rooting for you.
I agree. You will be a fun mom! You'll be the mom who doesn't sweat the grass stains and the torn knees. The mom who has tons of art supplies and fun things to do. All the kids will want to play at your house--and all the little boys will have crushes on you.
Anyone who isn't thrilled for you can go suck tacks.
Life is horrifying and terrifying and beautiful and magical, and having a child is just more of that. You get to feel it all so much more keenly than everyone else, just like that whole preciousness-of-my-every-breathing-minute thing, because of everything you've had to go through to get here. I sympathize, but you will also have to excuse me for being very very excited, and very very hopeful for you.
As Gene Wilder's version of Willy Wonka says at the end, "Just remember, Charlie, what happened to the man who got everything he ever wanted."
Charlie: "What?"
GWVoWW: "He lived happily ever after.
Also, it occurs to me that stepping in kitty poo on New Year's was indeed prophetic; may it be so. May you be enjoying the pleasures of diaper changing before the year is out. :)
Amie...something told me to check this blog tonight...I never check it because I figured it was the same as your MySpace blog. Guess I was wrong.
My heart is breaking for you. I'm sorry I asked you about your health problems when you first came out with the announcement. I always try to make sure I don't say predicable crap all the time, but sometimes I slip up.
Now, I am happy for you. Don't you see that this is a miracle? Don't pass up this opportunity to explore your relationship with God.
As for the guilt, you have to let it go. You have to embrace this. Experience joy. Let yourself be happy. You DO deserve it. Let yourself hope. Let yourself dream. I believe in you and know you will be a wonderful mother.
Your friend,
berg
Hi Amorette,
I read your blog from time to time via links in Jeanne's blog. And, thanks for finding those "itty bitty titties"! Those are too funny, cool, and wonderful!
I, too, am very happy for you and wish you all the luck with your pregnancy - here's hoping you can find some kind of prenatal vitamin that works. I have a colleague here that is very knowledgable about native plants used for medicinal purposes - I need to email her anyway, and I'll ask her what might be suggested for pregnancy and the health of the baby.
For some reason, this morning when I got up, I thought of this particular post and felt compelled to weigh in on the topic. When I first read it, I cried, too, but I wasn't sure what to say. I just realized that the post resonated with me because of my own feelings of "not belonging" and feeling like an outsider most of my life.
You are in, what anthropologists (and other social scientists), call a liminal stage. It's a stage that's described as "betwixt and between" and describes that spot where you are transitioning from one status (infertile) to another (fertile). For me, I'm always caught in the middle because I'm from a blue collar family hobnobbing with middle/white class folks in academia. In other words, there are times when I act like one and other times when I act like the other and when I act blue collar in academia, it's frowned upon, or when I get all academic with my blue collar friends, they think I'm getting all hoity-toity on them. Or, being an Inupiaq Eskimo, but growing up white. So, when I'm with members of my community, they know I'm related to them, but I don't "act right". I'm caught in the middle.
But this is about you. You are caught in the middle here, between one status or group and another. Many of those close to you are, as you said, used to you being infertile. You used to belong to that group, that status. Now, however, you are in their status. The infertile group is used to you one way and now are having to get used to you joining the other group. So, you're caught in the middle. You know what it's like to be infertile, but now you're joining the fertile group. It's a scary thing for everyone around you to see you switch statuses. Ultimately, it's a change and change is hard for a lot of people.
I'm sure you've heard of "rites of passage". They exist in all cultures all over the world and are rituals that mark the transition from one status to another. High school graduation is one example - it marks the transition from kid to adult and in the "rite", people talk about how the kids have changed and gives them an idea of how they will be expected to behave in the new status.
I guess I'm suggesting that you make up a "rite of passage" for yourself. It may help you and all of your loved ones around you adjust to your new status.
I may be way off-base, here. If so, please tell me so! It was just something I thought about this morning for some reason. And, take time to celebrate and enjoy yourself! (I spent a lot of my pregnancy somewhat anxious because I didn't know what to expect; the ultrasound was very cool, though!) This is wonderful news and, again, I'm very happy for you!
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